NEUROMUSCULAR DISEASE CENTER
Overview & Personnel


NEUROMUSCULAR
  DISEASE CENTER


Patients
  Appointments & Care
  Telephone instructions
Clinical Laboratory
Clinical trials
Electrodiagnostic testing
Laboratory testing
Personnel
Research
Teaching
Website
CONTACT INFORMATION

Neuromuscular Division
660 South Euclid Avenue
Box 8111-Neurology
Saint Louis, MO 63110

Phone: 314-362-6981
Fax numbers
  General: 314-362-3752
  Clinical laboratory: 314-362-3413
Web site
  http://neuromuscular.wustl.edu/


BJC MAP

Saint Louis



NEUROMUSCULAR DISEASE CENTER: GENERAL DESCRIPTIONS

Our Neuromuscular Group conducts a variety of activities


NEUROMUSCULAR CLINIC
  • General information
    • We treat over 2,000 outpatients each year in our Neuromuscular Clinic at Washington University in Saint Louis.
      • Specific adult & childhood disease syndromes we treat include
        • Motor Neuron Disorders
          • Amyotrophic Lateral Sclerosis (ALS; Lou Gehrig's Disease)
          • Spinal Muscular Atrophy
        • Muscle Disorders
          • Muscular Dystrophy
          • Mitochondrial & Metabolic myopathies
          • Immune & Inflammatory Myopathies
        • Nerve Disorders: Peripheral neuropathies & Pain
        • Neuromuscular Junction: Myasthenia gravis & Myasthenic syndromes
      • Other patients
        • Most have disorders of: Muscle; Peripheral nerve
        • Some have: Ataxia; Spinal cord disorders
      • Neuromuscular Disorder Physicians: All are specialty trained in neuromuscular disorders
    • Our neuromuscular clinic is supported by the Muscular Dystrophy Association (MDA).
      • It is a designated ALS clinic.
    • A full range of available services includes
      • Medical Diagnostic & Treatment
      • Physical & Occupational therapy
      • Respiratory care
      • Nutritional, Swallowing & Speech services
      • Cardiac evaluation
      • Orthotics
      • Social work
      • Medical & Rehabilitation supplies
      • Wheelchair evaluation.
      • Ultrasound: Neuromuscular
      • Electrodiagnostics: Neuromuscular
      • Pathology: Muscle, Nerve & Skin
      • Autoantibody testing: Neuromuscular
      • Clinical Research: Testing & Evaluation
      • Genetics: Neuromuscular
      • Muscular Dystrophy Association (MDA) services
        • For all covered MDA-related disorders
        • The MDA is the only ALS service organization in Saint Louis committed
            to provide all their services for all ALS patients and families

  • Clinic Appointments: New Patient
    • Please send or fax medical records to
        Neuromuscular Disease Center
        Box 8111-Neurology
        660 South Euclid Avenue
        Saint Louis, MO 63110
        Phone: 314-362-6981; Fax: 314-362-3752
    • It is very helpful if the records include
      • A diagnosis or reason for referral
      • A recent history and physical examination by a neurologist
      • Insurance information
      • The name and address of referring physician(s) to whom we can send our reports
    • After two weeks call 314-362-6981 to discuss the status of your appointment
    • If there is a need for an urgent appointment
      • Please have your physician call us: 314-362-6981, option 5
    • Other information about new patient appointments
      • Call us at 314-362-6981 and choose option 1: Listen to directions

  • Telephone Instructions

  • Clinic visits: Patients should come to
    • The Center for Advanced Medicine (Forest Park & Euclid), 6th floor
    • Parking: North garage on Euclid Ave
    • Maps

  • Clinic appointments: Other
HELP: Contact information


NEUROMUSCULAR ELECTRODIAGNOSTIC SERVICE
  • Our active electrodiagnostic service (314-362-3324) studies 2,500 patients per year.
  • Available tests include
    • Electromyography
    • Nerve conduction studies
    • Repetitive nerve stimulation
    • Single fiber EMG
    • Quantitative sensory evaluation
    • Autonomic testing
    • Ultrasound: Nerve & Muscle
  • More information: See WUP website
















Gowers' sign
NEUROMUSCULAR CLINICAL LABORATORY



NEUROMUSCULAR PERSONNEL

Faculty
  Alan Pestronk (Director, Neuromuscular Division)
  Muhammad Al-Lozi (Director, Electrodiagnostic Lab)
  Julaine Florence (Director, Clinical Studies)
  Anne Connolly (Director, Pediatric Neuromuscular)
  Glenn Lopate
  Paul Golumbek
  Chris Weihl: Web Site
  Tim Miller: Web Site
  Craig Zaidman
  Arun Varadhachary
  R Brian Sommerville
  Robert Bucelli
  Stefanie Geisler
Fellows
  Year 1: Rocio Carolina Garcia, Alex Dietz,
    Naveen Addagatla, Ahmed Bamaga
  Year 2 or 3: Cindy Ly, Ziad Alhumayyd, Matt Burford
Administrative staff: Traci Christenson, Pat Foerstel,
    Marty Caldera, Tina Chisholm, Regina Johnson,
    Becky Nguyen, Laurie Doyle, Justine Pratt
Laboratory staff: Rati Choksi, Ruma Banerjee,
    Robyn Reese, Beth Streif, Shobhna Mehta,
    Richard Keeling, Khristina Gutting, Gary Mueller
Clinical trials group: Julaine Florence, Reneé Renna,
    Kathryn Foy, Krystal Reese, Alyssa Sonsoucie,
    Catherine Siener, Linda Schimmoeller
    Jennifer Jockel-Balsarotti, Pallavi Anand
Rehabilitation Services: Kathryn Foy, Becca Gadeken,
    Catherine Seiner, Rob Hails, Julaine Florence
    Reneé Renna, Katie Rybczynski, Carrie Mosley
Muscular Dystrophy Association (MDA):
    Therese Gabriel, Monica Meriwether, Toni Hails



MDA Telethon: September 2010

Images
  Neuromuscular Group
  Former Neuromuscular Fellows
  Changes

Fellowship



NEUROMUSCULAR RESEARCH: Our research spans a wide range of clinical and basic topics.
We study disorders of the spinal cord, peripheral nerve, neuromuscular junction and muscle.
Disorders under study include:
  Immune mechanisms and autoantibodies in neuromuscular disorders.
  Hereditary disorders of the spinal cord, nerve, neuromuscular junction and muscle.
  Clinical trials of medications and trophic factors in neuromuscular disorders.

Clinical studies & trials at the Neuromuscular Disease Center at Washington University include  

 INFORMATION: Call Ms. Traci Christenson at 314-362-6981, Option 5
  * Open to new patients

    Amyotrophic lateral sclerosis
Treatment trials & Natural history studies*
    Neuromuscular Disease Project: Healthy volunteers & Patients with NM disorders
Biomarkers*
Cerebrospinal fluid repository*
    Neuromuscular Genetics Project: Hereditary Disorders
Motor Neuron Disease (ALS)*
Nerve Disease*
Muscle Disease*
    Neuropathy
Multifocal motor neuropathy: Rituximab treatment
Anti-MAG neuropathy: Rituximab treatment
Waldenström's macroglobulinemia
Sjögren syndrome
    Spinal muscular atrophy
Spinraza ((nusinersen)
Sodium phenylbutyrate treatment for children
Valproate treatment for adults
Quality of life
    Duchenne muscular dystrophy
Quality of life
Genetic diagnosis*
GSK DMD 114876 Oligonucleotide treatment
Cardiomyopathy: Losartan vs Lisinopril
    Inherited myopathy: Other
Acid maltase: Diagnostic and treatment study
Limb-Girdle muscular dystrophy: Diagnostic and natural history study*
Distal myopathy + Paget's disease: Clinical and Genetic study*
Periodic paralysis: Dichlorphenamide
Ultrasound evaluation of muscle & nerve*
HIBM, GNE mutations: Treatment trial
    Immune & inflammatory myopathies
Myositis-specific antibodies: Clinical & pathological correlations
Dermatomyositis: Treatment trials
Dermatomyositis & Polymyositis: Pathology
Inclusion body myositis: Etanercept (Enbrel) treatment
Myasthenia gravis: Genome-wide association study
Cruikshank





Conferences and Teaching include
  • Neuromuscular Grand rounds (monthly; 1st Wednesday of each month 8 am)
  • Clinic patient review (weekly)
  • Clinical rounds (4 times weekly);
  • Electrodiagnostic
    • Clinical conference (Al-Lozi; weekly)
    • Basic EMG & Nerve conduction conference (Al-Lozi et al.; weekly)
    • Electrophysiology teaching conference (weekly)
  • Muscle and Nerve biopsy
    • Reading (weekly; Saturday mornings)
    • Teaching & Unknowns (weekly; Wednesday 2:45 pm)
  • Neuromuscular Journal Club (weekly; Friday 12:30 pm),
  • Laboratory meetings (Pestronk; weekly); (Basic group; 2x/month)
Cruikshank



Fellowships in neuromuscular diseases, electrodiagnosis and research are provided.
To apply send a personal letter and 3 letters of recommendation to
    Dr. A Pestronk (Neuromuscular Fellowship)
    Dr. M Al-Lozi (Neuromuscular Electrodiagnostic Fellowship)
Rotations (2 months) for residents in neurology and rehabilitation are available.



Guidelines for Autoantibody Testing:
Motor Syndromes
Anti-Sulfatide Antibodies
Anti-MAG Antibodies

The staff of the neuromuscular division also has a sense of humor.



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1/6/2017